Who is KC Cook?

Our founder, KC Cook, was diagnosed at just one year old with Cystic Fibrosis.

Now in his 30’s, he has made it his mission to live each day to the fullest, and take no breath for granted.

The Boost Foundation is “driven” to make a positive impact for those living with this terminal condition through education to the public, providing once in a lifetime motorsport experiences to those with CF, and giving a face to this profoundly complex disease.

There are currently about 30,000 children and adults living with Cystic Fibrosis. In recent years, researchers have developed a medicine that targets CF’s cause, rather than its symptoms.

These drugs, ivacaftor (Kalydeco) and lumacaftor/ivacaftor (Orkambi), and Trikafta (elexacaftor/tezacaftor/ivacaftor and ivacaftor) are part of a class of drugs known as cystic fibrosis transmembrane conductance regulator (CFTR) modulators.

Patients have seen major gains in lung function and overall health. This is not a cure for Cystic Fibrosis, and unfortunately, these CFTR modulators only work for 90% of the gene specific mutations. KC finds himself in the 10% that cannot be helped by current CFTR modulators.

In an effort to raise awareness, and an understanding of this genetic disease, we encourage you to do some research to learn more about how to help and understand.

As of 2024 there is still NO cure for CF